8 Comments
User's avatar
Amber Horrox's avatar

Ah this is incredible !!! What a journey! And to be sharing it as you go like this is amazing. This journey isn’t linear (something I’ve learned the hard way). Is it possible with your new scary that it was always there before, just masked by another scary? The only reason I ask is that I’ve come across scaries I didn’t have an awareness of before but in my case they were being masked and paled into insignificance because the other scary was so severe. I love that you’ve learnt to be ok with not feeling good all the time. When I realised that most days I felt ok and some days I even felt good (other days/weeks: horrific), it was a big breakthrough for me. I actually realised feeling ok was good enough. It was a big door opener to joy and I hope you find the same too.

Expand full comment
Lou Belle's avatar

Thanks Amber! 100% my new scaries have always been there. It's now very clear to me that I've cycled through some general themes my entire life, generally stemming from the same 3-4 core fears. There's an OCD recovery channel on YouTube that has actually helped a lot with my understanding around this. And I think reframing our bad days helps so much in accepting them. Have you found that?

If I see it as my brain testing me, or as my body processing some heavy stuff, it makes it a lot easier for me to manage than if I'm terrified it's a sign of illness.

Expand full comment
Amber Horrox's avatar

So interesting and insightful ! I’ve certainly found the phrase “it’ll pass” to be incredible for severe pain days. And the ability to reparent myself, understand my needs and take great care to meet them has helped tremendously. I recently posed the question “what would happen if we let go of the fear we hold around pain?” And I guess it’s similar to your approach in some ways and the increased understand in what is actually happening in your body. (A big part of my own healing too).

Expand full comment
Amy - The Tonic's avatar

Amazing update, Lou! 🧡 I’ve recommitted to Gupta so I’m on a similar journey, but not as far along progress-wise. Was fatigue one of your main ‘scaries’?

Reading your post was inspiring. May you continue progressing!

Expand full comment
Lou Belle's avatar

PEM was definitely a big scary for me! So when I had to push through on that walk it took a lot of faith in the process. I gave myself a few days to recover without panicking. I think not being fearful of crashing was a big factor in me getting over that hurdle. I knew I could handle it if it did happen because I had before.

I'm excited for you! It's going to take time and I know this is only just the beginning of the road for me. Please feel free to reach out if you want to share resources! A friend and I have been compiling everything we're learning and I'm happy to share :)

Expand full comment
Sheila's avatar

I love the renaming to scaries and pineapples 🍍 ! I think I’m going to use that one about my life. The word pineapple sounds so good when you say it too. Pineapple 🍍

Expand full comment
Lou Belle's avatar

Haha exactly why I chose it- such a fun word. Like bubbles 🫧

Expand full comment
Sheila's avatar

Keep all those onomatopoeic words coming!

Expand full comment